WeggiePedia

From WeggiePedia

Wegener’s granulomatosis usually affects the upper respiratory tract (sinuses, nose and trachea), lungs and kidneys. Not all patients will have all sites affected.[1]

A Collaborative Approach to Wegener's Granulomatosis Information

There is a wealth of information available on Wegener's Granulomatosis disease. A lot is written by those afflicted with this disease, their relatives and friends.

WeggiePedia is designed to be a repository of information on Wegener's Granulomatosis written by those that have the disease as well as those affected by it including relatives and friends.

This site is in the form of a Wiki meaning that anyone can sign on and contribute by editing content directly on the page. The aim is for enough people to contribute to make this a valuable resource for anyone looking for information on Wegener's Granulomatosis.

This site collects content on Drugs, Physicians, Health Care, Social Security, Symptoms, Support Groups, Patient Advocacy and Research but if you have another Wegener's Granulomatosis-related topic that you think should be here, just go ahead and Sign Up to add a page!

With treatment, you're likely to recover from Wegener's granulomatosis. However, you may feel stress about the possibility of recurrence or about any damage the disease may cause, such as to your kidneys. Here are some suggestions for coping with the disease:

• Educate yourself about Wegener's granulomatosis. The more you know, the better prepared you'll be to deal with complications or recurrences. Besides talking to your doctor, you may want to talk to a counselor or medical social worker. Or you may find it helpful to talk to other people with Wegener's granulomatosis.
• Maintain a strong support system. Family and friends can help you tremendously as you go through this difficult time. Sometimes, though, you may find the concern and understanding of other people with Wegener's granulomatosis especially comforting. Your doctor or a medical social worker may be able to put you in touch with a support group. [2]